FollowMe is a pioneer in the emerging field of Personal Health Records. Launched in 2000, FollowMe was one of the first web-based, patient-owned repositories for electronic health information. Since then, FollowMe has consistently advocated on behalf of patients and for the ability of all consumers to have improved access to their health information so that they can share and exchange their information—with the appropriate consent and permissions in place—in order to improve their health. This ability should be backed up with the right for consumers to maintain the confidentiality and security of their information. FollowMe has a successful history of developing solutions to health care challenges facing vulnerable populations. The FollowMe platform can been customized to serve specific populations and patient/consumer groups. Most notable is www.mivia.org, a a PHR designed for migrant and seasonal farm workers and their clinicians launched in 2004 and now serving more than 22,000 members in five states. In 2006, FollowMe partnered with the EKCITA Health Information Exchange (HIE) to develop one of the first condition-specific PHRs, www.myhealthkeeper.org. Funded under an U.S. Agency for Healthcare Research and Quality grant, MyHealthKeeper focused on patients living with diabetes. In 2007, FollowMe partnered with Community Health Information Collaborative (CHIC), a federally funded collaborative in Minnesota, to develop a PHR serving individuals with developmental disabilities living in residential care facilities and an EHR to support their caretakers. This PHR, www.healthbio.org was designed to serve as a community care record for patients whose information needed to be shared across multiple systems of care and caregivers. Most recently, FollowMe launched www.healthshack.info a Personal Health Information System (PHIS) for system-based youth and those aging out of foster care. Cynthia Solomon, founder and president, is a nationally recognized health advocate and member of the Markle Foundation Connecting for Health Workgroup. She participated in developing the recommendations and standards for interoperability between Electronic Health Records (EHRs) and Personal Health Records (PHRs), which were submitted to the U.S. Office of the National Coordinator for Health Information Technology, “Connecting Americans to their Healthcare” (7/2004). She has testified on PHR technology to the NCVHS NHIISPELL OUT workgroup (4/2005), the Consumer Empowerment Workgroup–American Health Information Community on the role of Government in PHR technology (5/2006), the Presidential IT Commission on Interoperability (www.endingthedocumentgame.gov), and the Institute of Medicine’s Roundtable on Health Literacy (3/2008). Ms. Solomon also recently provided testimony to the U.S. Office of National Coordinator (ONC) Policy Committee on Meaningful Use (6/2010). Heidi Stovall, vice president, has been responsible for the expansion and “grass roots” community development of the FollowMe PHRs serving vulnerable populations, including MiVIA and Health Shack. Her experience and expertise in helping design, build and sustain community collaborative and outreach programs is an essential ingredient to fully engaging consumers to participate in health information technology projects. This is particularly important when dealing with consumers who are underserved, uninsured or who face barriers due to language or economic status. FollowMe technical and development staff includes experienced senior level engineers. The FollowMe team has the ability to provide technical development and programmatic staff expertise to projects and clients to facilitate interoperability through interfaces between HIEs and the PHR, as well as addressing the technical requirements and functions to facilitate consumer consent. Located in Sonoma, California, FollowMe has worked with organizations across the country, including universities, research institutes, major tertiary care centers and other hospitals.

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